Startseite Angehörige sterbenskranker Menschen in verschiedenen Versorgungsformen
Artikel
Lizenziert
Nicht lizenziert Erfordert eine Authentifizierung

Angehörige sterbenskranker Menschen in verschiedenen Versorgungsformen

  • Karin Oechsle EMAIL logo
Veröffentlicht/Copyright: 25. Februar 2023

Zusammenfassung

Angehörige Sterbender sind einerseits Teil des Versorgungssystems der Sterbenden, andererseits sind sie auch Betroffene mit eigenen Sorgen und Ängsten. Die Probleme, Bedürfnisse und Aufgaben der Angehörigen variieren dabei auch in Anhängigkeit vom Versorgungsort der Sterbenden. Zudem unterscheiden sich die Erwartungen der Angehörigen daran, was eine „gute“ Sterbesituation ausmacht, je nach Versorgungsform, ob Zuhause, im Hospiz, auf Palliativstationen, im Krankenhaus oder Pflegeheim.

Abstract

Family caregivers of dying persons are part of the care system of the dying, but on the other hand, they are concerned persons themselves with their own sorrows and fears. The family caregivers’ problems, needs and duties can differ depending on the place of end-of-life care. In addition, the expectations of family caregivers on what they consider “good” end-of-life care also differs depending on the care situation –at home, in palliative or hospice care, in hospitals or nursery homes.


*Korrespondenz: Prof. Dr. med. Karin Oechsle, W3-Professur für Palliativmedizin, mit Schwerpunkt Angehörigenforschung, Ärztliche Leitung Palliativmedizin, Universitätsklinikum Hamburg-Eppendorf, Martinistr. 52, 20246 Hamburg, Germany

  1. Autorenerklärung

  2. Autorenbeteiligung: Die Autorin trägt die volle Verantwortung für den Inhalt des Artikels. Finanzierung: Die Autorin erklärt, dass sie keine finanzielle Förderung für diesen Artikel erhalten hat. Die zitierten eigenen Forschungsprojekte wurden aber maßgeblich gefördert von der Hamburger Krebsgesellschaft e.V. im Rahmen ihrer damaligen Stiftungsprofessur für Palliativmedizin mit Schwerpunkt Angehörigenforschung. Interessenkonflikt: Die Autorin erklärt, dass kein wirtschaftlicher oder persönlicher Interessenskonflikt vorliegt. Ethisches Statement: Alle hier zitierten Studien wurden in Übereinstimmung mit der Deklaration von Helsinki durchgeführt.

  3. Author Declaration

  4. Author contributions: The author has accepted responsibility for the entire content of this submitted manuscript. Funding: Authors state no funding for this review article. All cited research own projects were funded by the Hamburg Cancer Society within her Full Professorship for Palliative Care with Focus on Family Caregiver Research during the time they were performed. Conflict of interest: The author states no conflict of interest. Ethical statement: All cited studies were performed in accordance with the Helsinki Declaration.

Literatur

1. Oechsle K, Ullrich G, Marx G, Benze G, Heine J, Dickel LM, et al. Psychological burden in family caregivers of patients with advanced cancer at initiation of specialist palliative care. BMC Palliative Care 2019;18:102.10.1186/s12904-019-0469-7Suche in Google Scholar PubMed PubMed Central

2. Bainbridge D, Seow H. Palliative care experience in the last 3 months of life: a quantitative comparison of care provided in residential hospices, hospitals, and the home from the perspectives of bereaved caregivers. Am J Hosp Palliat Care 2018;35:456–63.10.1177/1049909117713497Suche in Google Scholar PubMed PubMed Central

3. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. J Am Med Assoc 2000;284:2476–82.10.1001/jama.284.19.2476Suche in Google Scholar PubMed

4. Oechsle K, Goerth K, Bokemeyer C, Mehnert A. Anxiety and depression in caregivers of terminally ill cancer patients: impact on their perspective of the patients’ symptom burden. J Palliat Med 2013;16:1095–101.10.1089/jpm.2013.0038Suche in Google Scholar PubMed

5. Grant PC, Depner RM, Levy K, LaFever SM, Tenzek KE, Wright ST, et al. Family caregiver perspectives on end-of-life dreams and visions during bereavement: a mixed methods approach. J Palliat Med 2020;23:48–53.10.1089/jpm.2019.0093Suche in Google Scholar PubMed

6. Ullrich A, Theochari M, Bergelt C, Marx G, Woellert K, Bokemeyer C, et al. Ethical challenges in family caregivers of patients with advanced cancer - a qualitative study. BMC Palliat Care 2020;19:70.10.1186/s12904-020-00573-6Suche in Google Scholar PubMed PubMed Central

7. WHO-Definition Palliativmedizin 2002.Suche in Google Scholar

8. Woodman C, Baillie J, Sivell S. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Support Palliat Care 2016;6:418–29.10.1136/bmjspcare-2014-000794Suche in Google Scholar PubMed PubMed Central

9. Pottle J, Hiscock J, Neal RD, Poolman M. Dying at home of cancer: whose needs are being met? The experience of family carers and healthcare professionals (a multiperspective qualitative study). BMJ Support Palliat Care 2020;10:e6.10.1136/bmjspcare-2016-001145Suche in Google Scholar PubMed

10. Wu MP, Huang SJ, Tsao LI. The life experiences among primary family caregivers of home-based palliative care. Am J Hosp Palliat Care 2020;37:816–22.10.1177/1049909120907601Suche in Google Scholar PubMed

11. McPherson L, Milligan S, Stevens E. Participating in the personal care of a person living with a life-limiting illness in a hospice inpatient setting: the informal caregiver’s perspective. Int J Palliat Nurs 2020;26:246–57.10.12968/ijpn.2020.26.5.246Suche in Google Scholar PubMed

12. Quigley DD, McCleskey SG. Improving care experiences for patients and caregivers at end of life: a systematic review. Am J Hosp Palliat Care 2021;38:84–93.10.1177/1049909120931468Suche in Google Scholar PubMed PubMed Central

13. Ullrich A, Marx G, Bergelt C, Benze G, Zhang Y, Wowretzko F, et al. Supportive care needs and service use during palliative care in family caregivers of patients with advanced cancer: a prospective longitudinal study. Support Care Cancer 2021;29:1303–15.10.1007/s00520-020-05565-zSuche in Google Scholar PubMed PubMed Central

14. Kremeike K, Ullrich A, Schulz H, Rosendahl C, Boström K, Kaur S, et al. Dying in hospital in Germany – optimising care in the dying phase: study protocol for a multi-centre bottom-up intervention on ward level. BMC Pall Care 2022;21:67.10.1186/s12904-022-00960-1Suche in Google Scholar PubMed PubMed Central

15. Gott M, Robinson J, Moeke-Maxwell T, Black S, Williams L, Wharemate R, et al. ‘It was peaceful, it was beautiful’: a qualitative study of family understandings of good end-of-life care in hospital for people dying in advanced age. Palliat Med 2019;33:793–801.10.1177/0269216319843026Suche in Google Scholar PubMed

16. Hartog CS, Schwarzkopf D, Riedemann NC, Pfeifer R, Guenther A, Egerland K, et al. End-of-life care in the intensive care unit: a patient-based questionnaire of intensive care unit staff perception and relatives’ psychological response. Pall Med 2015;29: 336–45.10.1177/0269216314560007Suche in Google Scholar PubMed

17. Schenell R, Ozanne A, Strang S, Henoch I. Residents’ and family members’ perceptions of care quality and self-determination in palliative phase in residential care. Pall Supp Care 2020;18:69–81.10.1017/S1478951519000178Suche in Google Scholar PubMed

Online erschienen: 2023-02-25
Erschienen im Druck: 2023-02-23

©2023 Walter de Gruyter GmbH, Berlin/Boston

Heruntergeladen am 12.9.2025 von https://www.degruyterbrill.com/document/doi/10.1515/pubhef-2022-0101/pdf
Button zum nach oben scrollen