Impact of school participation on quality of life of Brazilian children with cerebral palsy
-
Lígia Maria Presumido Braccialli
,
Michelle Zampar Silva
Abstract
The study aimed to analyze the impact of school participation on quality of life of Brazilian children with cerebral palsy. Participants of the study were primary caregivers of children with CP: 39 caregivers of children not attending regular or special school and 74 caregivers of children attending regular or special school. Children with CP, including males and females, were between 4 and 12 years old. Data collection was carried out through individual interviews and application of the questionnaire Cerebral Palsy Quality of Life Questionnaire for Children CP QOL-Child (4–12 years). There was a significant difference in quality of life between the group of children attending school and the group not attending school for the Functioning Domains (p=0.0014), participation and physical health (p=0.0277) and emotional well-being (p=0.05). The worst score was obtained for the pain and impact of disability domain and impact of disability for both groups. We also found significant difference in the distribution of quality of life between genders. The results indicated that the opportunity to experience school has a positive impact on the quality of life of children with cerebral palsy in relation to functioning, participation and physical health and emotional well-being, regardless of gender and age.
References
1. Bax M, Goldstein M, Rosenbaum P, Leviton A, Paneth A, Dan B, et al. Review proposed definition and classification of cerebral palsy, April 2005 Executive Committee for the Definition of Cerebral Palsy. Neurology 2005;47:571–6.Search in Google Scholar
2. Lin JP. The cerebral palsies: a physiological approach. J Neurol Neurosurg Psychiatry 2003;74(Suppl. 1):i23–9.10.1136/jnnp.74.suppl_1.i23Search in Google Scholar PubMed PubMed Central
3. Shimony JS, Lawrence R, Neil JJ, Inder TE. Imaging for diagnosis and treatment of cerebral palsy. Clin Obstet Gynecol 2008;51:787–99.10.1097/GRF.0b013e3181870b22Search in Google Scholar PubMed
4. Lima CL, Fonseca LF. Paralisia Cerebral. Rio de Janeiro: Guanabara-Koogan, 2004.Search in Google Scholar
5. Surveillance of cerebral palsy in Europe. Prevalence and characteristics of children with cerebral palsy in Europe. Dev Med Child Neurol 2002;44:633–40.Search in Google Scholar
6. Morales NM. Avaliação transversal da Qualidade de Vida de crianças e adolescente com paralisia cerebral por meio de um instrumento genérico. Dissertação (Mestrado)-Curso Ciências da Saúde, Universidade Federal de Uberlândia, Uberlândia, 2005:119.Search in Google Scholar
7. Msall ME, Park JJ. Neurodevelopmental management strategies for children with cerebral palsy: optimizing function, promoting participation, and supporting families. Clin Obstet Gynecol 2008;51:800–15.10.1097/GRF.0b013e31818a0431Search in Google Scholar PubMed
8. Shikako-Thomas K, Lach L, Majnemer A, Nimigon J, Cameron K, Shevell M. Quality of life from the perspective of adolescents with cerebral palsy: “I just think I’m a normal kid, I just happen to have a disability”. Qual Life Res 2009;18:825–32.10.1007/s11136-009-9501-3Search in Google Scholar PubMed
9. Seidl EM, Zannon CM. Quality of life and health: conceptual and methodological issues. Cadernos Saúde Pública 2004;20:580–8.Search in Google Scholar
10. Braccialli LM, Braccialli AC, Sankako AN, Luiza M, Almeida S. Quality Of Life Questionnaire For Children With Cerebral Palsy (CP Qol-Child): translation and cultural adaptation for Brazil. J Hum Growth Develop 2013;23:1–10.10.7322/jhgd.61289Search in Google Scholar
11. O’Shea TM. Diagnosis, treatment, and prevention of cerebral palsy. Clin Obstet Gynecol 2008;51:816–28.10.1097/GRF.0b013e3181870ba7Search in Google Scholar PubMed PubMed Central
12. Braccialli L, Bagagi P, Sankako AN, Araújo RC. Quality of life of caregivers of people with special needs. Rev Bras de Educação Especial 2012;18:113–26. Availble at: http://scholar.google.com/scholar?hl=en&btnG=Search&q=intitle:Qualidade+de+vida+de+ccuidadore+de+pessoas+com+necessidades+especiais#3.10.1590/S1413-65382012000100008Search in Google Scholar
13. White-Koning M, Arnaud C, Dickinson H, Thyen U, Beckung E, Fauconnier J, et al. Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy. Pediatrics 2007;120:804–14. Available at: http://pediatrics.aappublications.org/content/120/4/e804.short.10.1542/peds.2006-3272Search in Google Scholar PubMed
14. Johnston MV, Hagberger H. Review Sex and the pathogenesis of cerebral palsy. Dev Med Child Neurol 2007;49:74–8.Search in Google Scholar
15. Vargus-Adams J. Health-related quality of life in childhood cerebral palsy. Arch Phys Med Rehabil 2005;86:940–5. Available at: http://www.sciencedirect.com/science/article/pii/s0003999304014790.10.1016/j.apmr.2004.10.036Search in Google Scholar PubMed
16. Araújo RC, Omote S. Attribution of seriousness degree to physical handicap due to injury extension and school setting. Rev Bras de Educação Especial 2005;11:241–54.Search in Google Scholar
17. Braccialli LM, Manzini EJ, Reganhan WG. Lazer, escola e ocupação do tempo livre: análise de relatos de alunos com paralisia cerebral. Arquivos Brasileiros de Paralisia Cerebral 2005;2:26–35.Search in Google Scholar
18. Frontini R, Crespo C, Carona C, Canavarro MC. Health-related quality of life and its correlates in children with cerebral palsy: an exploratory study. J Dev Phys Disabil 2011;24:181–96.10.1007/s10882-011-9265-xSearch in Google Scholar
©2016 by De Gruyter
Articles in the same Issue
- Frontmatter
- Editorial
- An introduction to the International Classification of Functioning, Disability and Health (ICF)
- Original Articles
- An introduction to the International Classification of Functioning, Disability and Health (ICF)
- Spectral analysis of heart rate variability
- Brief functional analysis of repetitive verbal behavior (vocal stereotypy) for an adult with acquired brain injury
- Impact of school participation on quality of life of Brazilian children with cerebral palsy
- A survey of disabled persons about their physical activity
- Effect of PNF technique for knee muscles on lower limb performance in subacute stroke – an experimental study
- Korean early childhood educators’ self-reported versus observed strategies for addressing challenging behaviors: an exploratory study
- Adaptation: Vineland Adaptive Behavior Scale for 3–9 year-old Indian children
- Assessment of selected behavior aspects of 10 male persons with profound intellectual disability in regard to atmospheric conditions during a three-month-long observation
- An examination of language and nonverbal abilities in twins with Apert syndrome
- Hypothalamus-pituitary-adrenal-axis associations with self- vs. parental ratings of depression in boys with an autism spectrum disorder
- Managing stress in schools: teachers coping with special education children
- Lexical decision task for taxonomic and thematic categorization in typically developing Kannada-English-speaking bilingual children
- Using curriculum-based measurement data to monitor the effectiveness of the Wilson Reading System for students with disabilities: an exploratory study
- Evaluation of a leadership and intrapersonal development subject for university students in Hong Kong: findings based on 2 years
- Technology to support positive occupational engagement and communication in persons with multiple disabilities
- Case Reports
- Sonographic diagnosis of simultaneous bilateral quadriceps tendon rupture
- Ketamine and the core symptoms of autism
Articles in the same Issue
- Frontmatter
- Editorial
- An introduction to the International Classification of Functioning, Disability and Health (ICF)
- Original Articles
- An introduction to the International Classification of Functioning, Disability and Health (ICF)
- Spectral analysis of heart rate variability
- Brief functional analysis of repetitive verbal behavior (vocal stereotypy) for an adult with acquired brain injury
- Impact of school participation on quality of life of Brazilian children with cerebral palsy
- A survey of disabled persons about their physical activity
- Effect of PNF technique for knee muscles on lower limb performance in subacute stroke – an experimental study
- Korean early childhood educators’ self-reported versus observed strategies for addressing challenging behaviors: an exploratory study
- Adaptation: Vineland Adaptive Behavior Scale for 3–9 year-old Indian children
- Assessment of selected behavior aspects of 10 male persons with profound intellectual disability in regard to atmospheric conditions during a three-month-long observation
- An examination of language and nonverbal abilities in twins with Apert syndrome
- Hypothalamus-pituitary-adrenal-axis associations with self- vs. parental ratings of depression in boys with an autism spectrum disorder
- Managing stress in schools: teachers coping with special education children
- Lexical decision task for taxonomic and thematic categorization in typically developing Kannada-English-speaking bilingual children
- Using curriculum-based measurement data to monitor the effectiveness of the Wilson Reading System for students with disabilities: an exploratory study
- Evaluation of a leadership and intrapersonal development subject for university students in Hong Kong: findings based on 2 years
- Technology to support positive occupational engagement and communication in persons with multiple disabilities
- Case Reports
- Sonographic diagnosis of simultaneous bilateral quadriceps tendon rupture
- Ketamine and the core symptoms of autism
