16 Art as a way of improving participatory action research: an experience with youngsters with an intellectual disability and their families
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Carlota García Román
Abstract
This chapter describes the use of different artistic expression strategies in a participatory action research process. The protagonists of this project are young people with intellectual disabilities and their families in the context of a socio-occupational training programme at the university. The main objective of the research is to explore themes around the overprotection–autonomy continuum from the participants’ perspectives. A set of artistic techniques from different disciplines (visual art, performing art, and music) were used as a means to discuss and define the terms and their implications. Critically, this was in a participatory manner. At the beginning, the young people and their parents worked separately and independently following the same research steps and performing similar activities. The process and the methodology created opportunities to bridge the gap and increase mutual understanding that would not be possible through the daily interactions of normal life. Concrete examples are presented that highlight the benefits and difficulties of introducing activities not commonly found in a university environment. The analysis also includes a critical reflection about the possible use of art techniques in participatory action research projects with people with intellectual disabilities.
Abstract
This chapter describes the use of different artistic expression strategies in a participatory action research process. The protagonists of this project are young people with intellectual disabilities and their families in the context of a socio-occupational training programme at the university. The main objective of the research is to explore themes around the overprotection–autonomy continuum from the participants’ perspectives. A set of artistic techniques from different disciplines (visual art, performing art, and music) were used as a means to discuss and define the terms and their implications. Critically, this was in a participatory manner. At the beginning, the young people and their parents worked separately and independently following the same research steps and performing similar activities. The process and the methodology created opportunities to bridge the gap and increase mutual understanding that would not be possible through the daily interactions of normal life. Concrete examples are presented that highlight the benefits and difficulties of introducing activities not commonly found in a university environment. The analysis also includes a critical reflection about the possible use of art techniques in participatory action research projects with people with intellectual disabilities.
Chapters in this book
- Front Matter i
- Contents ix
- List of figures and tables xi
- Notes on contributors xiii
- Introduction 1
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Arts-based research as a method to understand and give voice to marginalised groups
- Using arts-based methods to explore existential issues around ageing 13
- Arts- and music-based activities and nondeliberative participatory research methods: building connection and community 24
- Arts-based methods to co-create knowledge and reconstruct power relations with marginalised women in and through research 33
- Autoethnographic playwriting and performance for self-healing and advocacy 45
- Using photography to research the ‘other’: the validity of photography for social work research – a visual case study from China 55
- Mixed arts-based methods as a platform for expressing lived experience 68
- Arts-based methods to support and reveal new mothers’ and families’ experiences: a positive parenting and feminist approach 77
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Using arts-based research to listen to, and give voice to, children in social work
- “I don’t like the cameras in the house. They’re looking at us all the time”: the contribution of Photovoice to children in a post-hospitalisation programme 89
- Arts-based research work with migrant children 102
- Using creative art research approaches to assess arts-based interventions with children in post-disaster contexts 117
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Arts-based research as a way for researchers and community members to understand communities
- Murals and photography in community engagement and assessment 129
- Forum theatre as participatory action research with community workers 139
- A/r/tography, rhizomatic storytelling, and ripple effects mapping: a combined arts-based and community mapping methodology to evaluate the impact of COVID-19 expressive arts support groups for frontliners in the Philippines 148
- Art and artefact: displaying social work through objects 162
- Building research capacity: scaffolding the process through arts-based pedagogy 170
- Art as a way of improving participatory action research: an experience with youngsters with an intellectual disability and their families 181
- Epilogue 198
- Index 200
Chapters in this book
- Front Matter i
- Contents ix
- List of figures and tables xi
- Notes on contributors xiii
- Introduction 1
-
Arts-based research as a method to understand and give voice to marginalised groups
- Using arts-based methods to explore existential issues around ageing 13
- Arts- and music-based activities and nondeliberative participatory research methods: building connection and community 24
- Arts-based methods to co-create knowledge and reconstruct power relations with marginalised women in and through research 33
- Autoethnographic playwriting and performance for self-healing and advocacy 45
- Using photography to research the ‘other’: the validity of photography for social work research – a visual case study from China 55
- Mixed arts-based methods as a platform for expressing lived experience 68
- Arts-based methods to support and reveal new mothers’ and families’ experiences: a positive parenting and feminist approach 77
-
Using arts-based research to listen to, and give voice to, children in social work
- “I don’t like the cameras in the house. They’re looking at us all the time”: the contribution of Photovoice to children in a post-hospitalisation programme 89
- Arts-based research work with migrant children 102
- Using creative art research approaches to assess arts-based interventions with children in post-disaster contexts 117
-
Arts-based research as a way for researchers and community members to understand communities
- Murals and photography in community engagement and assessment 129
- Forum theatre as participatory action research with community workers 139
- A/r/tography, rhizomatic storytelling, and ripple effects mapping: a combined arts-based and community mapping methodology to evaluate the impact of COVID-19 expressive arts support groups for frontliners in the Philippines 148
- Art and artefact: displaying social work through objects 162
- Building research capacity: scaffolding the process through arts-based pedagogy 170
- Art as a way of improving participatory action research: an experience with youngsters with an intellectual disability and their families 181
- Epilogue 198
- Index 200
