Implementation of the Mind Youth Questionnaire (MY-Q) for routine health-related quality of life screening of adolescents with type 1 diabetes in a large tertiary care center
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Aleksandra Stojanova
Abstract
Objectives
Prevalence of diabetes distress and mental health comorbidities among adolescents with type 1 diabetes (T1D) is high. Despite recommendations for routine psychosocial risk assessment, there is little guidance for their implementation. This study aims to describe the implementation and baseline outcomes of the Mind Youth Questionnaire (MY-Q), a validated psychosocial screening tool for health-related quality of life (QoL) including mood, among adolescents living with T1D.
Methods
Adolescents aged 13–18 years completed the MY-Q from October 1, 2019–April 1, 2023. Baseline characteristics, MY-Q results including categories flagged positive (noting possible areas of concern), debrief duration, and frequency of social work or mental health referral were collected and analyzed using descriptive statistics.
Results
A total of 343 adolescents (mean age 15.3 years; 52 % female) completed a baseline MY-Q. Median overall MY-Q debrief time (IQR) was 10.0 min (6.0, 20.0). About 290 (84.5 %) adolescents had at least one of seven categories flagged, most commonly “Family” (61 %). About 30 % of adolescents had “Mood” flagged, and 2.9 % of adolescents were referred to mental health following debrief.
Conclusions
Without the need for additional resources, implementation of the MY-Q in a pediatric tertiary care diabetes clinic successfully identified QoL issues and mental health concerns among adolescents with T1D.
Acknowledgments
We would like to thank Dr. Ian Zenlea and the Trillium Health Sciences Diabetes team for their help with implementation of the MY-Q into our clinical care. We would also like to thank Saunya Dover for her support as a study coordinator.
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Research ethics: Submitted to the Children’s Hospital of Eastern Ontario Research Ethics Board for review and exempted as a quality assurance/improvement project.
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Informed consent: Informed consent was obtained from all individuals included in this study.
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Author contributions: AS participated in data collection and entry, wrote, revised, and finalized the short communication. AA conceptualized the study, designed, and implemented the study with ZT, led the implementation of the MYQ, was involved in data interpretation and supported AS in writing the short communication. NM and M-AH led the data analysis. ZT designed and implemented the study with AA and participated in data collection and entry. NK was involved in data collection and entry. CZ, LS, CR, JP, JC contributed to the development of the study protocol, and provided input into the implementation of the MY-Q. EG and SL provided input into the implementation of the MY-Q. All authors revised the short communication and approved the final version for publication.
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Competing interests: None declared.
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Research funding: None declared.
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Data availability: The raw data can be obtained on request from the corresponding author.
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Artikel in diesem Heft
- Frontmatter
- Review
- Tackling access and payer barriers for growth hormone therapy in Saudi Arabia: a consensus statement for the Saudi Working Group for Pediatric Endocrinology
- Original Articles
- Does an episode of diabetic ketoacidosis affect thyroid function tests in pediatric patients?
- Association between proinflammatory cytokines and arterial stiffness in type 1 diabetic adolescents
- Endocrinological and metabolic profile of Gaucher disease patients treated with enzyme replacement therapy
- Diurnal 11-ketotestosterone and 17-hydroxyprogesterone saliva profiles in paediatric classical congenital adrenal hyperplasia
- Growth after pediatric kidney transplantation: a 25-year study in a pediatric kidney transplant center
- Long term clinical follow up of four patients with Wolfram syndrome and urodynamic abnormalities
- Evaluation of copeptin in children after stimulation with clonidine or L-Dopa
- Examination of quality of life and psychiatric symptoms in childhood Graves’ disease
- Timing of onset of menses after GnRH agonist treatment for central precocious puberty
- Implementation of the Mind Youth Questionnaire (MY-Q) for routine health-related quality of life screening of adolescents with type 1 diabetes in a large tertiary care center
- Case Reports
- Medulloblastoma in a child with osteoma cutis – a rare association due to loss of GNAS expression
- Ectopic lingual thyroid with subclinical hypothyroidism in children
- Pituitary stalk interruption syndrome due to novel ROBO1 mutation presenting as combined pituitary hormone deficiency and central diabetes insipidus
- A 14-year-old girl with premature ovarian insufficiency but with a positive pregnancy test
Artikel in diesem Heft
- Frontmatter
- Review
- Tackling access and payer barriers for growth hormone therapy in Saudi Arabia: a consensus statement for the Saudi Working Group for Pediatric Endocrinology
- Original Articles
- Does an episode of diabetic ketoacidosis affect thyroid function tests in pediatric patients?
- Association between proinflammatory cytokines and arterial stiffness in type 1 diabetic adolescents
- Endocrinological and metabolic profile of Gaucher disease patients treated with enzyme replacement therapy
- Diurnal 11-ketotestosterone and 17-hydroxyprogesterone saliva profiles in paediatric classical congenital adrenal hyperplasia
- Growth after pediatric kidney transplantation: a 25-year study in a pediatric kidney transplant center
- Long term clinical follow up of four patients with Wolfram syndrome and urodynamic abnormalities
- Evaluation of copeptin in children after stimulation with clonidine or L-Dopa
- Examination of quality of life and psychiatric symptoms in childhood Graves’ disease
- Timing of onset of menses after GnRH agonist treatment for central precocious puberty
- Implementation of the Mind Youth Questionnaire (MY-Q) for routine health-related quality of life screening of adolescents with type 1 diabetes in a large tertiary care center
- Case Reports
- Medulloblastoma in a child with osteoma cutis – a rare association due to loss of GNAS expression
- Ectopic lingual thyroid with subclinical hypothyroidism in children
- Pituitary stalk interruption syndrome due to novel ROBO1 mutation presenting as combined pituitary hormone deficiency and central diabetes insipidus
- A 14-year-old girl with premature ovarian insufficiency but with a positive pregnancy test
