Genetic literacy and experiential knowledge on sickle cell disease among Canadian- and foreign-born male and female Anglophone and Francophone youth in Canada
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Margareth Santos Zanchetta
, Anita Sarpong
, Juliet Osei-Boateng , Alessar Nazzal , Maria Teixeira , Agnès Lainé und Marlene Rémy-Thélusma
Abstract
Objectives
Growing global human mobility raises concerns about impacts on global health, particularly on the prevalence of sickle cell disease. This research unveiled the level of genetic literacy on sickle cell disease of male and female Anglophone and Francophone youth living in Canada. The research responded to questions about whether the type of information about the disease has been more prevalent among the youth’s family, friends, acquaintances and school circles, and the influence of such information on shaping the current youth level of genetic literacy on the disease.
Methods
An online survey hosted by a Canadian university (2019/2020) platform was conducted with youth (n=87, aged 16–29) recruited in their natural, social environments in seven Canadian provinces. Data analysis used descriptive statistics and manual qualitative content analysis.
Results
Youth, mostly Canadian-born, 71.42 % Francophones and 67.12 % Anglophones, descend from parents who had been born in countries at risk for the disease. Results indicated that experiential knowledge is due to the familiarity with the disease occurrence among family members and acquaintances. Participants did not comment about how academic-gained knowledge could influence their own decision on becoming a parent.
Conclusions
Independently of their country of birth, Canadian youth seem to have unmet information needs: a complex challenge requiring creativity and simplicity to deliver information through attractive media.
Funding source: 2017 Work & Learn Research Assistant Program, Toronto Metropolitan University (formerly Ryerson University) and Faculty of Community Services – 2021 Publication Grant.
Award Identifier / Grant number: n/a
Acknowledgments
The authors thanks Bukola Salami, Tofi Ajibolade, Cherrie James, Mark Kocsis, Milena Oliva, Anel Hared, Andreanne Boisjoli, Shant Ketenjian, as well as many other anonymous individuals for the support for the community recruitment of youth in churches, mosques, and other social circles. Special “Obrigada” to Stéphanie Pedrotti who helped with the literature review. To Michael LaPointe for editing the manuscript.
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Research ethics: The research was conducted according to the guidelines of the Declaration of Helsinki and approved by the Ryerson (formerly) University Research Ethics Board (REB# 2018-113) and Comité d’éthique de la recherche of the Collège Boréal (CEP # 2018-09-01) both located in the city of Toronto, province of Ontario, Canada.
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Informed consent: Explicit online informed consent was obtained from all individuals involved in the research.
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Author contributions: Conceptualization: MSZ, AL, MT, MR-T. Investigation: MSZ, AS. Methodology: MSZ, AS, AL, MT. Formal Analysis: MSZ, AS, JO-B. Writing – Original Draft Preparation: MSZ, AS, JO-B, AN. Project Administration: MSZ. Supervision: MSZ. Writing Review: MSZ, AL, MT, MR-T. Funding Acquisition: MSZ, AS.
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Competing interests: Authors state no conflict of interest.
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Research funding: This work was supported by the 2017 Work & Learn Research Assistant Program, Toronto Metropolitan University (formerly Ryerson University) earned by the first and second authors and Faculty of Community Services – 2021 Publication Grant.
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Data availability: Not applicable.
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© 2023 Walter de Gruyter GmbH, Berlin/Boston
Artikel in diesem Heft
- Frontmatter
- Reviews
- Association between diet, mental health and sleep quality in university students during the COVID-19 pandemic: a systematic review
- Overview of adolescent idiopathic scoliosis and associated factors: a scoping review
- Original Articles
- Genetic literacy and experiential knowledge on sickle cell disease among Canadian- and foreign-born male and female Anglophone and Francophone youth in Canada
- Effect of dolutegravir-based drug combinations on the level of medication adherence and viral load among adolescents living with HIV in resource-limited setting: a pre-post design
- Perception of social accountability among medical students in Egypt
Artikel in diesem Heft
- Frontmatter
- Reviews
- Association between diet, mental health and sleep quality in university students during the COVID-19 pandemic: a systematic review
- Overview of adolescent idiopathic scoliosis and associated factors: a scoping review
- Original Articles
- Genetic literacy and experiential knowledge on sickle cell disease among Canadian- and foreign-born male and female Anglophone and Francophone youth in Canada
- Effect of dolutegravir-based drug combinations on the level of medication adherence and viral load among adolescents living with HIV in resource-limited setting: a pre-post design
- Perception of social accountability among medical students in Egypt