A national guideline for youth-friendly health services developed by chronically ill young people and health care professionals – a Delphi study

Ena Lindhart Thomsen; Pernille Grarup Hertz; Charlotte Blix; Kirsten A. Boisen

doi:10.1515/ijamh-2020-0185

Artikel

A national guideline for youth-friendly health services developed by chronically ill young people and health care professionals – a Delphi study

Ena Lindhart Thomsen , Pernille Grarup Hertz , Charlotte Blix und Kirsten A. Boisen

Veröffentlicht/Copyright: 2. September 2020

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Aus der Zeitschrift International Journal of Adolescent Medicine and Health Band 34 Heft 6

Abstract

Objectives

Significant variation in cultural and socio-economic factors across different countries means that modification of existing guidelines for youth-friendly health services are needed. Furthermore, including the views and perspectives of young people in developing health services add significant value. The aim of this study was to develop a national guideline for youth-friendly health services using the Delphi method.

Methods

We invited young people with chronic conditions, managers of paediatric, psychiatric and relevant adult departments and health care professionals with experience and interest in adolescent medicine to participate. The initial list of elements was constructed based on international guidelines and systematic reviews. The study consisted of three electronic questionnaire rounds assessing relevance, importance and whether the elements were essential/very important, respectively. We used 70% agreement as cut-off.

Results

More than 70% of participants agreed that only one element was essential: ‘Young people should be actively involved in decisions about their treatment and encouraged and supported to ask questions about their illness and treatment’. Additionally, 18 elements reached more than 70% agreement, when the ‘essential’ was combined with the ‘very important’ category. We grouped these 19 elements into five themes: 1) staff competences and workflow, 2) developmentally appropriate communication, 3) focus on youth life, including mental health 4) youth participation and shared decisions, and 5) autonomy and transitional care.

Conclusion

This guideline for a youth-friendly health care system may serve as inspiration for concrete changes, both locally and internationally, as it was developed together by young people, staff, and management.

Keywords: adolescent; adolescent health services; delphi study; health planning guideline; youth-friendly

Kirsten A. Boisen , Consultant, M.D., PhD, Center of Adolescent Medicine, Department of Pediatric and Adolescent Medicine, Copenhagen University Hospital Rigshospitalet, Blegdamsvej 9, Copenhagen, 2100, København Ø, Denmark, E-mail: Kirsten.arntz.boisen@regionh.dk

Funding source: Egmont Fonden

Acknowledgments

We want to thank all the participating young people, managers and health care professionals, who dedicated their time and efforts to this Delphi study.

Research funding: This study was supported by the Egmont Foundation.
Author contributions: All authors have accepted responsibility for the entire content of this manuscript and approved its submission.
Competing interests: Authors state no conflict of interest.
Ethical approval: The study was conducted in accordance with the Helsinki II Declaration [25]. In accordance with Danish regulations, no formal ethical approval was necessary, as the study only asked for the participants’ opinions and not personally identifiable data. Participants’ responses were treated confidentially.

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Received: 2020-07-17

Accepted: 2020-08-02

Published Online: 2020-09-02

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https://doi.org/10.1515/ijamh-2020-0185

Schlagwörter für diesen Artikel

adolescent; adolescent health services; delphi study; health planning guideline; youth-friendly