Perception of transition readiness and preferences for use of technology in transition programs: teens’ ideas for the future
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Mark A. Applebaum
,
Erica F. Lawson
Abstract
Background: Efforts to facilitate transition of care to adult providers for adolescents with chronic disease are not uniformly successful and many patients encounter challenges. The goal of this study was to assess transition readiness and preferences for tools to aid in the transition process with an emphasis on technology and social media.
Methods: We surveyed and performed focus groups on patients aged 13–21 years from a pediatric university-based rheumatology and general pediatric practice. Demographics and transition readiness were assessed using a questionnaire. Transition readiness was assessed by examining patient knowledge and independence with care. Focus groups were conducted to elicit perspectives about desirable features of a transition program and useful tools.
Results: Thirty-five patients completed surveys; and 20 patients and 13 of their parents participated in a focus group. The median patient age was 17 years and 74.3% were female. A Likert scale (0–10, 10=most) was used to evaluate concern over changing to an adult medical provider, (mean=6.4, SD=2.6), preparedness for disease self-management (mean=6.0, SD=2.8), and perceived importance of self-managing their condition (mean=7.1, SD=3.1). Themes that emerged from focus groups included a desire for support groups with other teens, a preference for using text messaging for communication and a desire for an online health management program.
Conclusions: Teens with chronic disease are able to identify health maintenance tasks and strategies that will aid in developing independence with healthcare management. These findings support the idea that developing engaging applications and support groups will assist teens in the transitioning.
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©2013 by Walter de Gruyter Berlin Boston
Artikel in diesem Heft
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Artikel in diesem Heft
- Masthead
- Masthead
- Editorial
- Unintentional death in childhood and adolescence
- Review
- Detached, distraught or discerning? Fathers of adolescents with chronic illness: a review of the literature
- Original Articles
- Perception of transition readiness and preferences for use of technology in transition programs: teens’ ideas for the future
- Adaptation of an internet-based depression prevention intervention for Chinese adolescents: from “CATCH-IT” to “grasp the opportunity”
- Smaller pelvic size in pregnant adolescents contributes to lower birth weight
- R620W polymorphism of protein tyrosine phosphatase PTPN22 in Egyptian children and adolescents with systemic lupus erythematosus: relation to thyroid autoimmunity
- Motivational stage of change in young patients undergoing day treatment for eating disorders
- Leveraging microfinance to impact HIV and financial behaviors among adolescents and their mothers in West Bengal: a cluster randomized trial
- Patterns of contraception choice among Hispanic and non-Hispanic female adolescents
- Translation of children’s cycling into steps: the share of cycling in 10-year-olds’ physical activity
- Weight gain in an eating disorders day program
- Case Report
- Weight loss as a result of religious zeal in young Orthodox Jewish males
