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19 Being the First and Only to Ask
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Chapters in this book
- Frontmatter i
- CONTENTS vii
- Introduction: Charting the Course 1
-
I GETTING UNDERWAY
- Introduction 7
- 1 Rolling to Freedom 11
- 2 Regaining Control 19
- 3 Changing Tides: What Does It Mean to Be Blind? 27
- 4 Dear Cassy 35
- 5 Sea Legs: Working Around Motion Sickness 41
-
II BETWEEN THE DEVIL AND THE DEEP BLUE SEA
- Introduction 49
- 6 A Safe Space 53
- 7 When Fieldwork Doesn’t Work: A Broken Bildungsroman 61
- 8 Birds, Bees, and Anxieties 69
- 9 My Brown Waterproof Boots 77
- 10 Hope Is My Anchor 83
-
III RALLYING THE CREW
- Introduction 89
- 11 The Place I Rest 93
- 12 Sometimes It Doesn’t Get Better, but That’s OK, Too 105
- 13 Christmas on Rangatira Island 115
- 14 Living with a Rare Condition 123
- 15 Planning the Journey of a Lifetime 131
-
IV IN THE HEART OF THE MAELSTROM
- Introduction 139
- 16 The Butt Balloon 143
- 17 This Is Wallace Alfred Russel Simonis 149
- 18 The Day That Changed Everything 159
- 19 Being the First and Only to Ask 169
- 20 Lost in New Orleans 177
- 21 Ascending the Cinder Cone 185
-
V REFLECTIONS IN THE WATER
- Introduction 191
- 22 Thinking Beyond the “Social Model of Disability” 195
- 23 Suffer in Silence or Leave 205
- 24 (In)Visibly Eroding Bones, Bodies, and Landscapes 215
- 25 The Abyss 223
- 26 Navigating the Curve 231
- 27 Tidy Columns 237
-
VI I AM THE CAPTAIN OF MY SHIP
- Introduction 243
- 28 Broader Impacts 247
- 29 Doo hwił hóyéeda . . . A Lesson Lost in Translation . . . 253
- 30 The Ridge 259
- 31 Who I Am 265
- 32 The Best Place for My Hearing Aids Is on My Desk 273
- Conclusion: Aid to Navigation 279
- Acknowledgments 283
- Reflection and Discussion Questions 287
- Further Reading and Resources 291
- Glossary 297
- Bibliography 301
- About the Contributors 303
Chapters in this book
- Frontmatter i
- CONTENTS vii
- Introduction: Charting the Course 1
-
I GETTING UNDERWAY
- Introduction 7
- 1 Rolling to Freedom 11
- 2 Regaining Control 19
- 3 Changing Tides: What Does It Mean to Be Blind? 27
- 4 Dear Cassy 35
- 5 Sea Legs: Working Around Motion Sickness 41
-
II BETWEEN THE DEVIL AND THE DEEP BLUE SEA
- Introduction 49
- 6 A Safe Space 53
- 7 When Fieldwork Doesn’t Work: A Broken Bildungsroman 61
- 8 Birds, Bees, and Anxieties 69
- 9 My Brown Waterproof Boots 77
- 10 Hope Is My Anchor 83
-
III RALLYING THE CREW
- Introduction 89
- 11 The Place I Rest 93
- 12 Sometimes It Doesn’t Get Better, but That’s OK, Too 105
- 13 Christmas on Rangatira Island 115
- 14 Living with a Rare Condition 123
- 15 Planning the Journey of a Lifetime 131
-
IV IN THE HEART OF THE MAELSTROM
- Introduction 139
- 16 The Butt Balloon 143
- 17 This Is Wallace Alfred Russel Simonis 149
- 18 The Day That Changed Everything 159
- 19 Being the First and Only to Ask 169
- 20 Lost in New Orleans 177
- 21 Ascending the Cinder Cone 185
-
V REFLECTIONS IN THE WATER
- Introduction 191
- 22 Thinking Beyond the “Social Model of Disability” 195
- 23 Suffer in Silence or Leave 205
- 24 (In)Visibly Eroding Bones, Bodies, and Landscapes 215
- 25 The Abyss 223
- 26 Navigating the Curve 231
- 27 Tidy Columns 237
-
VI I AM THE CAPTAIN OF MY SHIP
- Introduction 243
- 28 Broader Impacts 247
- 29 Doo hwił hóyéeda . . . A Lesson Lost in Translation . . . 253
- 30 The Ridge 259
- 31 Who I Am 265
- 32 The Best Place for My Hearing Aids Is on My Desk 273
- Conclusion: Aid to Navigation 279
- Acknowledgments 283
- Reflection and Discussion Questions 287
- Further Reading and Resources 291
- Glossary 297
- Bibliography 301
- About the Contributors 303