Policy Press
Introduction
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Abstract
In February 2002, the Academy of Learned Societies for the Social Sciences organised a seminar in London to examine the theme of ‘Ethics and Research Guidelines’ from a diversity of perspectives. The majority of the participants and speakers of the event were social scientists with an interest in ethics and research. What emerged from the seminar was a diversity of views and approaches among social scientists concerning ethical issues. This book examines the relationship between researchers and participants across a number of different disciplines and from both perspectives. While the exploration of these issues begins in the context of social science, the book crosses the disciplinary boundaries that separate discussion of research ethics between the social and the natural sciences. This cross-disciplinary discussion is the main goal of this book. In this book, contribution from medicine, health, medical ethics, journalism, social policy, women’s studies, and mental health provide a diverse examination of the relationship between researchers and the researched. By describing the relationship between the researcher and the researched from different standpoints, this book illustrates research which challenges the traditional researcher-researched dichotomy, alongside standard research practice, hence, offering the opportunity to compare diverse perspectives. Part One of the book considers research and research ethics from the participants’s perspectives. Part Two consists of two chapters that address different experiences of the ethical review/governance process. Both of the chapters describe the researcher’s experiences of external ethical review through local ethics committee (LRECs). Part Three contains chapters by an investigating journalist, social scientist, epidemiologist, and a researcher activist.
Abstract
In February 2002, the Academy of Learned Societies for the Social Sciences organised a seminar in London to examine the theme of ‘Ethics and Research Guidelines’ from a diversity of perspectives. The majority of the participants and speakers of the event were social scientists with an interest in ethics and research. What emerged from the seminar was a diversity of views and approaches among social scientists concerning ethical issues. This book examines the relationship between researchers and participants across a number of different disciplines and from both perspectives. While the exploration of these issues begins in the context of social science, the book crosses the disciplinary boundaries that separate discussion of research ethics between the social and the natural sciences. This cross-disciplinary discussion is the main goal of this book. In this book, contribution from medicine, health, medical ethics, journalism, social policy, women’s studies, and mental health provide a diverse examination of the relationship between researchers and the researched. By describing the relationship between the researcher and the researched from different standpoints, this book illustrates research which challenges the traditional researcher-researched dichotomy, alongside standard research practice, hence, offering the opportunity to compare diverse perspectives. Part One of the book considers research and research ethics from the participants’s perspectives. Part Two consists of two chapters that address different experiences of the ethical review/governance process. Both of the chapters describe the researcher’s experiences of external ethical review through local ethics committee (LRECs). Part Three contains chapters by an investigating journalist, social scientist, epidemiologist, and a researcher activist.
Chapters in this book
- Front Matter i
- Contents v
- Notes on contributors vi
- Introduction 1
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Participation and inclusion
- Ethical considerations in service-user-led research: Strategies for Living Project 19
- Making the decision about enrolment in a randomised controlled trial 35
- Ethical protection in research: including children in the debate 55
- ‘An equal relationship’?: people with learning difficulties getting involved in research 73
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The review and governance process
- Research with psychiatric patients: knowing their own minds? 91
- Researching end of life in old age: ethical challenges 105
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Researchers’ relationships with participants
- Interviewing: the unspoken compact 121
- Using participative action research with war-affected populations: lessons from research in Northern Ireland and South Africa 137
- Conducting longitudinal epidemiological research in children 157
- Speaking truth to power: experiencing critical research 175
- Domestic violence and research ethics 195
- Conclusion 211
- Index 217
Chapters in this book
- Front Matter i
- Contents v
- Notes on contributors vi
- Introduction 1
-
Participation and inclusion
- Ethical considerations in service-user-led research: Strategies for Living Project 19
- Making the decision about enrolment in a randomised controlled trial 35
- Ethical protection in research: including children in the debate 55
- ‘An equal relationship’?: people with learning difficulties getting involved in research 73
-
The review and governance process
- Research with psychiatric patients: knowing their own minds? 91
- Researching end of life in old age: ethical challenges 105
-
Researchers’ relationships with participants
- Interviewing: the unspoken compact 121
- Using participative action research with war-affected populations: lessons from research in Northern Ireland and South Africa 137
- Conducting longitudinal epidemiological research in children 157
- Speaking truth to power: experiencing critical research 175
- Domestic violence and research ethics 195
- Conclusion 211
- Index 217
