10 ‘We don’t deal with people, we deal with bricks and mortar’: a lived experience perspective on UK health and housing policy

Kapitel in diesem Buch

1. Front Matter i
2. Contents iii
3. List of figures and tables vii
4. Foreword viii
5. Introduction 1
6. Service users and social policy: an introduction
7. Challenging injustice: the importance of collective ownership of social policy 14
8. Participation and solidarity in a changing welfare state 22
9. Social policy in developing countries: a post-colonial critique and participatory inquiry 33
10. Advancing sustainability: developing participatory social policy in the context of environmental disasters 43
11. Social policy and disability 51
12. A case study of children’s participation in health policy and practice 62
13. Who owns co-production? 74
14. Critiquing and reconceiving Beveridge’s ‘five giant evils’: key areas of British post-war social policy from a lived experience perspective
15. Rethinking disabled people’s rights to work and contribute 86
16. Talking policy as a patient 95
17. ‘We don’t deal with people, we deal with bricks and mortar’: a lived experience perspective on UK health and housing policy 98
18. Education (ignorance) addressing inclusive education: the issues and its importance from a participatory perspective 103
19. “For work, we came here to find work”: migrant Roma employment and the labour of language 107
20. The contribution of service user knowledges
21. Disability policy and lived experience: reflections from regional Australia 120
22. Renewing epistemologies: service user knowledge 132
23. Pornography, feminist epistemology and changing public policy 142
24. Making social policy internationally: a participatory research perspective 147
25. An inclusive life course and developmental approach to social policy
26. Disabled children’s lives: an inclusive life course and developmental approach to social policy 163
27. Troubled youth and troubling social policy: mental health from a Mad Studies perspective 172
28. Disability: an inclusive life course and developmental approach to social policy 181
29. Independent living from a Black Disabled Woman’s perspective 188
30. Food poverty and the policy context in Ireland 195
31. Implementing race equality policies in British health and social care: a perspective from experience 205
32. Participatory approaches to social policy in relation to ageing 211
33. Death, dying and digital stories 223
34. Transforming social policy
35. People acting collectively can be powerful 233
36. Their participation and ours: competing visions of empowerment 243
37. A participatory approach to professional practice 251
38. Dreams of justice 257
39. Sustainable-participatory social policy 262
40. Participatory social policy in a large EU research project 277
41. Campaigning and change
42. Approaches to activism
43. ‘What is strong, not what is wrong’ 292
44. Participatory social policy and social change: exploring the role of social entrepreneurship linked to forms of social and micro enterprises in the field of social care 297
45. Public duty, whistleblowing and scandal: influences on public policy 306
46. ‘Informed gender practice in acute mental health’: when policy makes sense 311
47. Making the case for single sex wards 314
48. #JusticeforLB: in search of truth, accountability and justice 319
49. The role of online platforms and social media
50. Guerilla policy: new platforms for making policy from below 323
51. A Magna Carta for learning disabled people 327
52. Pat’s Petition: The emerging role of social media and the internet 332
53. Breaking down barriers
54. Inclusion and difference in the formulation and operation of social policy
55. “LGBT History Month is a thing!” The story of an equal rights campaign 338
56. Progressing gender recognition and trans rights in the UK 343
57. User-led approaches to social policy
58. Transforming professional training and education – a gap mending approach: the PowerUs European partnership 349
59. Grassroots tackling policy: the making of the ‘Spartacus Report’ 355
60. Involvement for influence: developing the 4Pi Involvement Standards 362
61. Participatory research and evaluation
62. From expert to service user: challenging how lived experience is demeaned 369
63. Participatory methodologies involving marginalised perspectives 376
64. Developing the evidence to challenge ‘welfare reform’: the road to ‘Cash Not Care’ 389
65. Service user-controlled research for evidence-based policymaking 394
66. Participatory citizenship, gender and human trafficking in Nepal 406
67. Experiential knowledge in mental health policy and legislation: can we ever change the agenda? 418
68. Conclusion 427
69. Notes on contributors 435
70. Index 447