Chapters in this book

1. Frontmatter i
2. Contents vii
3. Foreword xi
4. Acknowledgments xvii
5. Introduction 1
6. Part 1: Labour and Prenatal Counselling
7. The “Perfect Pregnancy” Is a Scam 9
8. You Made Your Bed … 16
9. 12 May 22
10. No Bed of Roses 27
11. 13 May 29
12. 15 May, Night 33
13. End-of-Life Decisions for Extremely Low-Gestational-Age Infants: Why Simple Rules for Complicated Decisions Should Be Avoided 37
14. Difficult Decisions 50
15. Naming 54
16. 19 May 59
17. 20 May 61
18. Personalized Decision Making: Practical Recommendations for Antenatal Counseling for Fragile Neonates 66
19. Part 2: The Delivery and the First Days
20. The Delivery 89
21. Memories from Gene Dempsey 92
22. 23 May 95
23. 24 May 97
24. Half Mother at Home 99
25. 26 May 102
26. 30 May 104
27. 3 June 106
28. 6 June 108
29. 7 June 112
30. 10 June 113
31. 11 June 114
32. 13 June 117
33. 14 June 120
34. The Big Berthas 123
35. Part 3: The NICU
36. Dear Violette 127
37. Pepperoni Pizza and Sex 132
38. 17, 18 June 137
39. For Audrey-Anne 144
40. Shooting Stars 146
41. 19, 20 June 149
42. 21 June 152
43. Life Trajectories 156
44. 23 June 162
45. Red Underwear 165
46. My Love 170
47. 24 June 172
48. 26 June 174
49. 27 June 176
50. Other People 178
51. 4 July 184
52. Just Being There 185
53. 20 July 187
54. Part 4: Progress and Setbacks
55. 20 August 191
56. 22 August 192
57. Dear World 196
58. Learning to Fall 198
59. 24 August 201
60. 31 August 205
61. Term MRI for Small Preterm Babies: Do Parents Really Want to Know, and Why Has Nobody Asked Them? 211
62. Measuring and Communicating Meaningful Outcomes in Neonatology: A Family Perspective 215
63. Part 5: Coming Home
64. Germ-o-phobia 233
65. Meanwhile, with My Other Kids … 235
66. Rewriting Your Life 242
67. A Mother’s Love 245
68. The Backpack: The Sequel 250
69. After Violette, Am I a Better Doctor? 256
70. Tattoos, Beer, and Bow Ties: The Limits of Professionalism in Medicine 263
71. 26 September 268
72. What’s Your Dream? 271
73. 22 May 2011 272
74. Stronger and More Vulnerable: A Balanced View of the Impacts of the NICU Experience on Parents 275
75. Survival Guide for Parents 283
76. Part 6: Neonatology Information for Parents, Families, Clinicians, and All Those Who Care about Babies
77. Getting the Bad Stuff Out 301
78. Seven Don’ts for Families and Friends Helping Parents 307
79. The Best Ways to Help Parents in the NICU 315
80. Ethics and Etiquette in Neonatal Intensive Care 317
81. Notes 321
82. Glossary of Common Abbreviations Used in the NICU 343
83. Selected Bibliography 347
84. Resources and Further Reading 349