The transfer of care experience in young adults with type 1 diabetes
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April Yerges
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Yulia Semeniuk
Abstract
Objectives
To explore the experiences and perceptions of young adults with type 1 diabetes (T1D) after they transferred care from a pediatric to an adult clinic, utilizing an organized transfer process that included a Diabetes Transition Clinic (DTC) and a transfer letter (TL).
Methods
This retrospective study used a semi-structured interview 1–1.5 years after transfer of care, which gathered both quantitative and qualitative data of young adults (n=12) who transferred care at an average age of 19.6 years, within a Midwest academic medical center. Descriptive statistics and thematic analysis were used to analyze the data and to identify emerging themes.
Results
Most participants were worried about their transfer of care and found attending a DTC valuable. Most found the TL helpful in summarizing their diabetes care. Emerging themes demonstrated the importance of preparing the young adult for change, supporting their emotional journey, and developing connections with their new diabetes team.
Conclusions
For young adults with diabetes, the transfer of care from pediatric to adult is a time of apprehension. Incorporating a DTC and TL can facilitate this journey by preparing patients for change and developing ways to deepen connections with new providers.
Funding source: American Family Hospital and Clinics and the University of Wisconsin-Madison Pediatrics
Award Identifier / Grant number: 233-AAJ6714-536752-4
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Research ethics: The University of Wisconsin-Madison IRB approved this study #2022-0890, with ethical approval granted on 8/1/24. This study was conducted in accordance with the Declaration of Helsinki (as revised in 2013).
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Informed consent: Informed consent was obtained from all individuals included in this study, or their legal guardians or wards.
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Author contributions: All authors have accepted responsibility for the entire content of this manuscript and approved its submission.
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Use of Large Language Models, AI and Machine Learning Tools: None declared.
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Conflict of interest: The authors state no conflict of interest.
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Research funding: This study was financially supported by American Family Children’s Hospital and the University of Wisconsin-Madison. Pediatric Faculty Research and Development Award: Number: 233-AAJ6714-536752-4.
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Data availability: The datasets generated and/or analyzed during the current study are available from the corresponding author on reasonable request.
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© 2025 Walter de Gruyter GmbH, Berlin/Boston
Artikel in diesem Heft
- Frontmatter
- Original Articles
- Diabetes distress, depression, and future glycemic control among adolescents with type 1 diabetes
- Is oxytocin related to psychiatric symptoms in adolescents with obesity?
- Associations between body mass index and sleep duration in Brazilian children and adolescents: the moderating role of screen time
- The transfer of care experience in young adults with type 1 diabetes
- Assessing the efficacy of a hybrid closed loop system in a racial-ethnic minority cohort of children and adolescents with type 1 diabetes
- Do children with type 1 diabetes mellitus remain protected against hepatitis B?
- Influence of excess weight on metabolic risk factors in Argentinian preschool children
- Causal associations between childhood obesity and delayed puberty or height: a bidirectional two-sample Mendelian randomization study
- Differentiating true precocious puberty and puberty variants in consecutive 275 girls: a single center experience
- Development of bone mineral density and content in children with cerebral palsy: a retrospective, longitudinal study
- Insights in non-CAH pediatric primary adrenal insufficiency: a single-center experience from India
- Effect of empagliflozin treatment on laboratory and clinical findings of patients with glycogen storage disease type Ib: first study from Türkiye
- Clinical and laboratory characteristics of propionic acidemia in a Turkish cohort
- Short Communication
- The impact of the COVID-19 pandemic on DKA severity in Black and White pediatric patients
- Case Reports
- Evinacumab as an adjunct to lipid apheresis in an infant with homozygous familial hypercholesterolemia
- DNA ligase IV deficiency identified in a patient with hypergonadotropic hypogonadism: a case report
- Moebius syndrome and hypopituitarism: a case of multiple pituitary hormone deficiency and revision of the literature
Artikel in diesem Heft
- Frontmatter
- Original Articles
- Diabetes distress, depression, and future glycemic control among adolescents with type 1 diabetes
- Is oxytocin related to psychiatric symptoms in adolescents with obesity?
- Associations between body mass index and sleep duration in Brazilian children and adolescents: the moderating role of screen time
- The transfer of care experience in young adults with type 1 diabetes
- Assessing the efficacy of a hybrid closed loop system in a racial-ethnic minority cohort of children and adolescents with type 1 diabetes
- Do children with type 1 diabetes mellitus remain protected against hepatitis B?
- Influence of excess weight on metabolic risk factors in Argentinian preschool children
- Causal associations between childhood obesity and delayed puberty or height: a bidirectional two-sample Mendelian randomization study
- Differentiating true precocious puberty and puberty variants in consecutive 275 girls: a single center experience
- Development of bone mineral density and content in children with cerebral palsy: a retrospective, longitudinal study
- Insights in non-CAH pediatric primary adrenal insufficiency: a single-center experience from India
- Effect of empagliflozin treatment on laboratory and clinical findings of patients with glycogen storage disease type Ib: first study from Türkiye
- Clinical and laboratory characteristics of propionic acidemia in a Turkish cohort
- Short Communication
- The impact of the COVID-19 pandemic on DKA severity in Black and White pediatric patients
- Case Reports
- Evinacumab as an adjunct to lipid apheresis in an infant with homozygous familial hypercholesterolemia
- DNA ligase IV deficiency identified in a patient with hypergonadotropic hypogonadism: a case report
- Moebius syndrome and hypopituitarism: a case of multiple pituitary hormone deficiency and revision of the literature
