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Adults who had kidney disease in childhood

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Published/Copyright: November 1, 2010
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International Journal on Disability and Human Development
From the journal Volume 9 Issue 2-3

Abstract

A young adult male who recently turned 21 years of age has been followed by a group of pediatric kidney specialists since birth as he was born with a single dysplastic kidney. He progressed towards end stage renal disease and started hemodialysis in a pediatric inpatient center at the age of 19 years. Owing to being significantly overweight, he is not a suitable renal transplant candidate. He lives at home with his mother, who is his primary caregiver and his brother. He dropped out of school before the age of 18 years and has currently no intention to finish high school. He has short stature as he refused daily growth hormone injections in the past. During healthcare visits he has always been passive and his mother is making decisions for him. During the last several visits, he and the mother have requested initiation of transition into adult care as he feels it is now time. Both patient and mother also start to ask questions about the adult implications of his chronic kidney disease (CKD). CKD in children is somewhat complex and the implications for adults living with advanced kidney disease since childhood are significant. Optimal care of the adult patient who has been affected by advanced kidney disease since childhood requires a solid understanding of three main domains with significant overlap: (i) the underlying type of kidney disease and the multiple effects that CKD has on the body and mind of a child, (ii) the process of care transitioning from the pediatric to the adult environment, and (iii) the physical and psychosocial effects of the disease on the adult patient.

Keywords: adolescence; kidney disease; transition
Corresponding author: Stefan G. Kiessling, MD, University of Kentucky, Kentucky Children's Hospital, Pediatric Nephrology, 800 Rose Street, MN 109, Lexington, KY 40536, USA
Received: 2010-1-5
Accepted: 2010-2-15
Published Online: 2010-11-01
Published in Print: 2010-11-01

©2010 by Walter de Gruyter Berlin New York

Articles in the same Issue

  1. Editorial
  2. Adults with childhood illness
  3. Reviews
  4. Attention-Deficit/Hyperactivity Disorder: Epidemiology, assessment, and treatment among children, adolescents, and adults
  5. Caring for adults with cystic fibrosis
  6. Childhood asthma in adults
  7. Cyanotic congenital heart defects in adult patients
  8. Obstructive and regurgitant cardiac lesions in adults who had childhood heart disease
  9. Adults with left-to-right cardiac shunts and with shunts treated in childhood
  10. Transition of pediatric endocrine patients to adult care
  11. Adolescents and adults with inborn errors of metabolism
  12. Adults who had kidney disease in childhood
  13. Adult survivors of childhood cancer
  14. Adults with genetic syndromes
  15. Adult considerations of pediatric urologic care
  16. Adult patients with childhood anemias
  17. Disabled women and reproductive healthcare in the United States
  18. Children with allergic disease as adults
  19. Adults with congenital bleeding disorders
  20. Aging with intellectual disability. Current health issues
  21. Short Communication
  22. Transition from pediatric to adult care: social and family issues
https://doi.org/10.1515/IJDHD.2010.021
Keywords for this article
adolescence; kidney disease; transition

Articles in the same Issue

  1. Editorial
  2. Adults with childhood illness
  3. Reviews
  4. Attention-Deficit/Hyperactivity Disorder: Epidemiology, assessment, and treatment among children, adolescents, and adults
  5. Caring for adults with cystic fibrosis
  6. Childhood asthma in adults
  7. Cyanotic congenital heart defects in adult patients
  8. Obstructive and regurgitant cardiac lesions in adults who had childhood heart disease
  9. Adults with left-to-right cardiac shunts and with shunts treated in childhood
  10. Transition of pediatric endocrine patients to adult care
  11. Adolescents and adults with inborn errors of metabolism
  12. Adults who had kidney disease in childhood
  13. Adult survivors of childhood cancer
  14. Adults with genetic syndromes
  15. Adult considerations of pediatric urologic care
  16. Adult patients with childhood anemias
  17. Disabled women and reproductive healthcare in the United States
  18. Children with allergic disease as adults
  19. Adults with congenital bleeding disorders
  20. Aging with intellectual disability. Current health issues
  21. Short Communication
  22. Transition from pediatric to adult care: social and family issues
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