Columbia University Press
The Handbook of LGBTQIA-Inclusive Hospice and Palliative Care
About this book
Author / Editor information
Reviews
Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania:
Within the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments.
Austin Chiang, founding president, Association for Healthcare Social Media:
Acquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read.
Dallas Ducar, president and CEO, Transhealth:
This is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals.
Holly Yang, president, American Academy of Hospice and Palliative Medicine:
The Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones.
Topics
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Frontmatter
i -
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Contents
vii -
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About Language in This Book
ix -
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Acknowledgments
xi -
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Preface
xv -
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Introduction: From “Special Population” to Inclusion – A Paradigm Shift
1 -
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1. Self-Awareness and Communication
25 -
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2. Sex, Gender, Sexual Orientation, Behavior, and Health
50 -
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3. Understanding Attitudes and Access to Care
75 -
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4. The History and Physical Examination
95 -
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5. Shared Decision Making and Family Dynamics
133 -
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6. Care Planning and Coordination
159 -
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7. Ethical and Legal Issues
183 -
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8. Patient and Family Education and Advocacy
210 -
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9. Psychosocial and Spiritual Issues
237 -
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10. Ensuring Institutional Inclusiveness
262 -
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11. Advocating for Change Beyond the Institution
278 -
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Glossary
285 -
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Supplemental Reading List
303 -
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About the Content Expert Reviewers
307 -
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References
313 -
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Index
331