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Transplanting Care
Shifting Commitments in Health and Care in the United States
Language:
English
Published/Copyright:
2016
About this book
The sudden call, the race to the hospital, the high-stakes operation—the drama of transplant surgery is well known. But what happens before and after the surgery? In Transplanting Care, Laura L. Heinemann examines the daily lives of midwestern organ transplant patients and those who care for them, from pretransplant preparations through to the long posttransplant recovery.
Heinemann points out that as efforts to control healthcare costs gain urgency—and as new surgical techniques, drug therapies, and home medical equipment advance—most of the transplant process now takes place at home, among kin. Indeed, the transplant system effectively depends on unpaid care labor, typically provided by spouses, parents, siblings, and others. Drawing on scores of interviews with patients, relatives, and healthcare professionals, Heinemann follows a variety of patients and loved ones as they undertake this uncertain and strenuous “transplant journey.” She also shows how these home-based caregiving efforts take place within the larger economic and political context of a paucity of resources for patients and caregivers, who ultimately must surmount numerous obstacles. The author concludes that the many snags encountered by transplant patients and loved ones make a clear case for more comprehensive health and social policy that treats care as a necessarily shared public responsibility.
An illuminating look at the long transplant journey, Transplanting Care also offers broader insight into how we handle infirmity in America—and how we might do a better job of doing so.
Author / Editor information
LAURA L. HEINEMANN is an associate professor of medical anthropology at Creighton University in Omaha, Nebraska.
Reviews
"Succinct, convincing, and organized, Transplanting Care provides a thoughtful, ethnographically rich account of the day-to-day care involved in looking after transplant recipients before, during, and after their transplant surgeries."
— Lesley A. Sharp, Ann Whitney Olin Professor of Anthropology, Barnard College"With its clear and compassionate prose, Transplanting Care makes an important contribution to ethnographic insights into understandings of care, kinship, chronic illness, and the moral influences they exert upon everyday life."
— SomatosphereTopics
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Frontmatter
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Contents
vii -
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Preface
ix -
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Acknowledgments
xi -
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Prologue
1 -
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Introduction
8 -
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Chapter 1. Early Navigations
21 -
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Chapter 2. Troubled Relations and Former Lives
39 -
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Chapter 3. Precarity and Policy
56 -
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Chapter 4. When Patients Are Also Caregivers
77 -
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Chapter 5. Conscripting Caregivers’ Health (Or, When Caregivers Are Patients, Too)
91 -
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Chapter 6. Transformations in Home Life and High-Tech Health Care
110 -
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Chapter 7. Revealing and Reframing Kinship and Care
129 -
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Conclusion
146 -
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Notes
155 -
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References
165 -
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Index
179
Publishing information
Pages and Images/Illustrations in book
eBook published on:
October 21, 2019
eBook ISBN:
9780813574455
Pages and Images/Illustrations in book
eBook ISBN:
9780813574455
Keywords for this book
Health; Care; Issues in medicine; Issues in Health; midwestern organ transplant patients; caregivers; resources for care giving; transplants; patients; health resources; advancements in surgical techniques; advancements in drug therapies; advancements in; home medical equipment; interviews with patients; comprehensive health and social policy; infirmity in America; unpaid care labor; home-based caregiving efforts; transplant journey; public responsibility; United States health care; health care system; post surgery care; bed ridden; transplant process
Audience(s) for this book
For universities and colleges of further and higher education