15. Brave New Genome

Chapters in this book

1. Frontmatter i
2. Contents v
3. Illustrations xi
4. Foreword xiii
5. Acknowledgments xxv
6. Note to Readers xxvii
7. Introduction 1
8. Part I. The biopolitical critique of bioethics: Historical context
9. 1. The Biological Inferiority of the Undeserving Poor 17
10. 2. Making Better Babies 32
11. 3. Eugenics and the Nazis 52
12. 4. Why the Nazis Studied American Race Laws for Inspiration 60
13. 5. Constructing Normalcy 63
14. 6. The Eugenics Legacy of the Nobelist Who Fathered IVF 73
15. Part II. Bioethics and its discontents
16. 7. A Sociological Account of the Growth of Principlism 81
17. 8. Why a Feminist Approach to Bioethics? 94
18. 9. Disability Rights Approach toward Bioethics? 106
19. 10. Differences from Somewhere 118
20. 11. Bioethical Silence and Black Lives 128
21. 12. The Ethicists 132
22. Part III. Emerging Biotechnologies, Extreme Ideologies
23. 13. The Genome as Commons 153
24. 14. Yuppie Eugenics 163
25. 15. Brave New Genome 169
26. 16. Can We Cure Genetic Diseases without Slipping into Eugenics? 175
27. 17. Cyborg Soothsayers of the High-Tech Hogwash Emporia 186
28. Part IV. Markets, Property, and the Body
29. 18. Flacking for Big Pharma 199
30. 19. Your Body, Their Property 212
31. 20. Where Babies Come From 216
32. 21. Dear Facebook, Please Don’t Tell Women to Lean In to Egg Freezing 226
33. 22. The Miracle Woman 228
34. Part V. Patients as Consumers in the Gene Age
35. 23. What Is Your DNA Worth? 241
36. 24. Should Patients Understand That They Are Research Subjects? 250
37. 25. Direct-to-Consumer Genetic Tests Should Come with a Health Warning 252
38. 26. Genetic Testing for All Women? 256
39. 27. Welcome, Freshmen: DNA Swabs, Please 259
40. 28. Me Medicine 264
41. 29. Public Health in the Precision-Medicine Era 267
42. Part VI. Seeking Humanity in Human Subjects Research
43. 30. Medical Exploitation 273
44. 31. The Body Hunters 280
45. 32. Guinea-Pigging 289
46. 33. Human Enhancement and Experimental Research in the Military 301
47. 34. Non-Consenting Adults 314
48. Part VII. Baby-Making in the Biotech Age
49. 35. Generation I.V.F. 319
50. 36. Queering the Fertility Clinic 328
51. 37. Reproductive Tourism 339
52. 38. Make Me a Baby as Fast as You Can 350
53. 39. Let’s Get Rid of the Secrecy in Donor-Conceived Families 355
54. Part VIII. Selecting Traits, Selecting Children
55. 40. Disability Equality and Prenatal Testing 361
56. 41. The Bleak New World of Prenatal Genetics 376
57. 42. Have New Prenatal Tests Been Dangerously Oversold? 379
58. 43. Sex Selection and the Abortion Trap 387
59. 44. A Baby, Please: Blond, Freckles— Hold the Colic 393
60. Part IX. Reinventing Race in the Gene Age
61. 45. Straw Men and Their Followers 399
62. 46. The Problem with Race-Based Medicine 410
63. 47. Race in a Bottle 415
64. 48. The Science and Business of Genetic Ancestry Testing 422
65. 49. All That Glitters Isn’t Gold 428
66. 50. High-Tech, High-Risk Forensics 435
67. Part X. Biopolitics and the Future
68. 51. Die, Selfish Gene, Die 441
69. 52. Toward Race Impact Assessments 461
70. 53. Human Genetic Engineering Demands More Than a Moratorium 472
71. 54. “Moral Questions of an Altogether Different Kind” 475
72. Afterword 493
73. Contributors 507
74. Index 511