Abstract
The Genetic Information Nondiscrimination Act of 2008 (GINA) represents a significant legislative step in protecting U.S. citizens from genetic discrimination in health insurance and employment. However, despite its broad preventive measures, GINA has limitations in scope and enforcement. Notably, it does not extend protections to life insurance, disability, and long-term care insurance, leaving U.S. citizens susceptible to genetic discrimination. State-level legislative efforts have tried to reconcile these vulnerabilities. Many state-level legislative efforts vary in effectiveness, with some states like Florida and Illinois enacting more robust laws. The future of genetic information protection requires an amendment to GINA or new federal legislation, drawing from successful state models to ensure adequate protections. This paper advocates for such national legislation, highlighting the minimal impact on the life insurance market and the importance of safeguarding genetic privacy to foster trust in genetic testing and scientific progress.
© 2023 Walter de Gruyter GmbH, Berlin/Boston
Articles in the same Issue
- Frontmatter
- Introduction
- Introduction to Volume XIV
- Articles
- A Compounding Problem: Pharmaceutical Importation and Drug Production in the United States
- The Push for the Free Transfer of IP Rights in Medical Biotechnology
- Do Your Genes Fit: How Life Insurance Companies Discriminate Based on Genetic Test Results
- Military Vaccine Mandates: Thirty-Five Navy SEALs Believe Fighting for Religious Exemptions is A Shot Worth Taking
- International Humanitarian Law’s Impact on the Development of Artificial Intelligence in Weapon Guidance Systems
- A Knife in the Heart or a Sword in the Courtroom: The Benefits and Drawbacks of Empathy in the Legal Field
Articles in the same Issue
- Frontmatter
- Introduction
- Introduction to Volume XIV
- Articles
- A Compounding Problem: Pharmaceutical Importation and Drug Production in the United States
- The Push for the Free Transfer of IP Rights in Medical Biotechnology
- Do Your Genes Fit: How Life Insurance Companies Discriminate Based on Genetic Test Results
- Military Vaccine Mandates: Thirty-Five Navy SEALs Believe Fighting for Religious Exemptions is A Shot Worth Taking
- International Humanitarian Law’s Impact on the Development of Artificial Intelligence in Weapon Guidance Systems
- A Knife in the Heart or a Sword in the Courtroom: The Benefits and Drawbacks of Empathy in the Legal Field