Abstract
Background: The necessity of referring adolescents with anorectal malformation (ARM) from pediatric units to adult care is unclear. The issue requires knowledge about the health of the adolescent.
Objective: To examine the physical outcome, sexual health and quality of life (QoL) in adolescents with ARM.
Methods: At medical counseling, 24 adolescents with ARM, 15–21 years of age, answered questionnaires about physical outcome according to the Krickenbeck follow-up and QoL according to SF 36 and gastrointestinal quality of life (Giqli). Matched control groups were used; 15 adolescents participated in deep interviews about sexual health and body imaging.
Results: Fecal soiling, constipation and gas incontinence were much higher for ARM patients compared with controls (p<0.05). QoL regarding large bowel function was lower for both genders compared with controls (p<0.05). Females scored lower in physically related QoL (p<0.05). Social and sexual adaption to the symptoms was obvious in the deep interviews.
Conclusion: Adolescents with ARM have considerable intestinal symptoms, which influence QoL and require adaption in intimate situations. A referral to adult care seems to be important, and continuous cooperation between the pediatric surgeon and adult care is suggested.
Gillian Sjödahl, Lexis English for Writers, Lund, Sweden, for linguistic revision of the manuscript. Fredrik Nilsson, biostatistician at the Competence Centre for Clinical Research, Skåne University Hospital, Lund, Sweden, for statistical advice.Sara Johnsdotter, Professor, and Sven-Axel Månsson, Professor, both at the Faculty of Health and Society, Malmö University, Sweden, for their cooperation. Mette Hambreus, MD at the Department of Pediatric Surgery, Skåne University Hospital, Lund, Sweden for her help with the figures.
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©2014 by Walter de Gruyter Berlin Boston
Articles in the same Issue
- Masthead
- Masthead
- Editorial
- To vaccinate or not to vaccinate
- Review
- Sexual and reproductive health of Portuguese adolescents
- Original articles
- Tobacco consumption among 12- to 15-year-old schoolchildren in Delhi
- Perceptions of communication, family adaptability and cohesion: a comparison of adolescents newly diagnosed with cancer and their parents
- The prevalence of bullying and cyberbullying in high school: a 2011 survey
- Short- and medium-term impact of a residential weight-loss camp for overweight adolescents
- Personal and family attributes of pregnant teenagers: findings from a community-based study in Sri Lanka
- Adolescents with anorectal malformation: physical outcome, sexual health and quality of life
- What sources do adolescents turn to for information about their health concerns?
- Experiences of returning to elite alpine skiing after ACL injury and ACL reconstruction
- Hyperandrogenemia in male autistic children and adolescents: relation to disease severity
- The career aspirations of adolescents with eating disorders: an exploratory study and suggested links to adolescent self-concept development
- Differential effects of religiosity on sexual initiation among Nigerian in-school adolescents
- Prevalence of menstrual disorders among adolescent girls in Osogbo, South Western Nigeria
- The concepts of work, study, and leisure of parents and children
- How do Iranian female adolescents express their health education needs? A needs assessment with qualitative thematic analysis
- Attitudes and knowledge levels of nurses and residents caring for adolescents with an eating disorder
- Predictors of suicide ideation and risk for HIV among juvenile offenders in Georgia
- Short Communication
- Association between food intake frequency and obesity among adolescent girls in Saudi Arabia
- Case reports
- Unusual cause of urethral bleeding in an adolescent: a case in dilemma
- Cannabinoid hyperemesis syndrome: a specific cause of cyclical vomiting
Articles in the same Issue
- Masthead
- Masthead
- Editorial
- To vaccinate or not to vaccinate
- Review
- Sexual and reproductive health of Portuguese adolescents
- Original articles
- Tobacco consumption among 12- to 15-year-old schoolchildren in Delhi
- Perceptions of communication, family adaptability and cohesion: a comparison of adolescents newly diagnosed with cancer and their parents
- The prevalence of bullying and cyberbullying in high school: a 2011 survey
- Short- and medium-term impact of a residential weight-loss camp for overweight adolescents
- Personal and family attributes of pregnant teenagers: findings from a community-based study in Sri Lanka
- Adolescents with anorectal malformation: physical outcome, sexual health and quality of life
- What sources do adolescents turn to for information about their health concerns?
- Experiences of returning to elite alpine skiing after ACL injury and ACL reconstruction
- Hyperandrogenemia in male autistic children and adolescents: relation to disease severity
- The career aspirations of adolescents with eating disorders: an exploratory study and suggested links to adolescent self-concept development
- Differential effects of religiosity on sexual initiation among Nigerian in-school adolescents
- Prevalence of menstrual disorders among adolescent girls in Osogbo, South Western Nigeria
- The concepts of work, study, and leisure of parents and children
- How do Iranian female adolescents express their health education needs? A needs assessment with qualitative thematic analysis
- Attitudes and knowledge levels of nurses and residents caring for adolescents with an eating disorder
- Predictors of suicide ideation and risk for HIV among juvenile offenders in Georgia
- Short Communication
- Association between food intake frequency and obesity among adolescent girls in Saudi Arabia
- Case reports
- Unusual cause of urethral bleeding in an adolescent: a case in dilemma
- Cannabinoid hyperemesis syndrome: a specific cause of cyclical vomiting