Challenging a Well Established Consent Norm?: One Time Consent for Biobank Research
-
Timothy Caulfield
Canada Research Chair in Health Law and Policy, Professor, Faculty of Law and School of Public Health, Research Director, Health Law Institute, University of Alberta.
Assistant Professor at the Faculty of Law, University of Alberta.
Director of the Indiana University Center for Bioethics, Assistant Dean for Bioethics, Professor of Medicine, and of Medical & Molecular Genetics at the Indiana University School of Medicine, and Professor of Philosophy in the School of Liberal Arts.
Abstract
Introduction
Large-scale biobanks of human biological materials linked to medical records are emerging as critical tools in research to tease out the complex interactions between genes and the environment and in ongoing development of diagnosis, prevention, and treatment of human disease. The evidence for this promise is found in the rush to establish these repositories by countries (Australia, UK, Sweden, Estonia, and Singapore), research organizations (NCI biobanks), and patient care groups.
About the authors
Canada Research Chair in Health Law and Policy, Professor, Faculty of Law and School of Public Health, Research Director, Health Law Institute, University of Alberta.
Assistant Professor at the Faculty of Law, University of Alberta.
Director of the Indiana University Center for Bioethics, Assistant Dean for Bioethics, Professor of Medicine, and of Medical & Molecular Genetics at the Indiana University School of Medicine, and Professor of Philosophy in the School of Liberal Arts.
© Walter de Gruyter
