Mcgill-queen's University Press
Other Endings
About this book
In this raw and intimate memoir Anita Slominska recounts her sister Shauna’s eighteen-month wait for a liver transplant that failed to take place in time to save her life. Shauna’s death, at age twenty-nine, defied the usual redemptive promise of a life-saving transplant and forced Slominska to confront difficult questions: Why was she so unprepared for the devastating loss of her sister? Why do so many chronicles of organ transplantation celebrate survival, while few acknowledge failure and loss? Who are the people who die waiting, and why are their stories untold?
Weaving together personal memoir with in-depth research, Other Endings explores the triumphalist narrative of transplantation as medical progress and happy ending. This narrative, Slominska argues, does not capture the complicated, messy, and imperfect reality, nor does it make room for the experiences of hope and anguish involved with waitlist deaths, which are more common than we realize. Incorporating excerpts from Shauna’s online journal as well as reflections on her own role as her sister’s caregiver, Slominska challenges readers to imagine what it is like for patients and families to experience a wait for a transplant that ends in death.
A profound contribution to narrative medicine, Other Endings excavates societal beliefs that shape our expectations of science and medicine, raising critical questions about why and how we tell illness stories. Throughout, Shauna remains central: the indelibly human face of one person who died waiting.
Author / Editor information
Topics
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Frontmatter
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Contents
v -
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Acknowledgments
vii -
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Abbreviations
ix -
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Introduction
1 -
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Learning About the Organ Shortage
11 -
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Do Not F--- with Me
21 -
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Die Waiting
29 -
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High Quality
56 -
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Death at 6:15
65 -
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The Story of MELD
78 -
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Failure
95 -
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Woodlawn Cemetery
113 -
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The Hepatic Happening
134 -
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Epilogue: The Bay of Fundy
138 -
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Notes
147 -
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Index
167