17 Public Engagement with Human Genetics

Chapters in this book

1. Front Matter i
2. Contents v
3. Introduction 1
4. The Purpose and Function of Public Participation
5. Giving Power to Public Voice 11
6. Parliamentary Technology Assessment in Europe and the Role of Public Participation 27
7. Democracy, Governance, and Public Engagement 45
8. External Conditions for Legitimate Public Engagement
9. Trust, Accountability, and Participation 69
10. Public Voices or Private Choices? 80
11. Challenges to Deliberations on Genomics 97
12. Internal Conditions for Legitimate Public Engagement
13. Deliberative Fears 115
14. Theorizing Deliberative Discourse 133
15. Institutional Contexts of Public Participation
16. Public Engagement and Knowledge Mobilization in Public and Private Policy 151
17. From Public Engagement to Public Policy 167
18. Participation in the Canadian Biotechnology Regulatory Regime 187
19. Modes of and Experiments in Participation
20. Swimming with Salmon 211
21. Science Media and Public Participation 229
22. N-Reasons 248
23. Contentious New Technology Introductions and e-Participation 261
24. UNDERSTANDING STAKEHOLDERS AND PUBLICS
25. Rethinking “Publics” and “Participation” in New Governance Contexts 279
26. Public Engagement with Human Genetics 293
27. The Limits of Liberal Values in the Moral Assessment of Genomic and Technological Innovation 310
28. Contributors 322
29. Index 328