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series: The Culture and Politics of Health Care Work
Series

The Culture and Politics of Health Care Work

Book Requires Authentication Unlicensed Licensed 2023

Robots Won't Save Japan addresses the Japanese government's efforts to develop care robots in response to the challenges of an aging population, rising demand for eldercare, and a critical shortage of care workers. Drawing on ethnographic research at key sites of Japanese robot development and implementation, James Wright reveals how such devices are likely to transform the practices, organization, meanings, and ethics of caregiving if implemented at scale.

This new form of techno-welfare state that Japan is prototyping involves a reconfiguration of care that deskills and devalues care work and reduces opportunities for human social interaction and relationship building. Moreover, contrary to expectations that care robots will save labor and reduce health care expenditures, robots cost more money and require additional human labor to tend to the machines. As Wright shows, robots alone will not rescue Japan from its care crisis. The attempts to implement robot care instead point to the importance of looking beyond such techno-fixes to consider how to support rather than undermine the human times, spaces, and relationships necessary for sustainably cultivating good care.

Book Requires Authentication Unlicensed Licensed 2023

In Spaces of Enslavement, Andrea C. Mosterman addresses the persistent myth that the colonial Dutch system of slavery was more humane.

Investigating practices of enslavement in New Netherland and then in New York, Mosterman shows that these ways of racialized spatial control held much in common with the southern plantation societies.

In the 1620s, Dutch colonial settlers brought slavery to the banks of the Hudson River and founded communities from New Amsterdam in the south to Beverwijck near the terminus of the navigable river. When Dutch power in North America collapsed and the colony came under English control in 1664, Dutch descendants continued to rely on enslaved labor. Until 1827, when slavery was abolished in New York State, slavery expanded in the region, with all free New Yorkers benefitting from that servitude.

Mosterman describes how the movements of enslaved persons were controlled in homes and in public spaces such as workshops, courts, and churches. She addresses how enslaved people responded to regimes of control by escaping from or modifying these spaces so as to expand their activities within them. Through a close analysis of homes, churches, and public spaces, Mosterman shows that, over the course of the seventeenth and eighteenth centuries, the region's Dutch communities were engaged in a daily struggle with Black New Yorkers who found ways to claim freedom and resist oppression.

Spaces of Enslavement writes a critical and overdue chapter on the place of slavery and resistance in the colony and young state of New York.

Book Requires Authentication Unlicensed Licensed 2023

In Kidney to Share, Martha Gershun tells the story of her decision to donate a kidney to a stranger. She takes readers through the complex process by which such donors are vetted to ensure that they are physically and psychologically fit to take the risk of a major operation. John D. Lantos, a physician and bioethicist, places Gershun's story in the larger context of the history of kidney transplantation and the ethical controversies that surround living donors. Together, they help readers understand the discoveries that made transplantation relatively safe and effective as well as the legal, ethical, and economic policies that make it feasible.

Gershun and Lantos explore the steps involved in recovering and allocating organs. They analyze the differences that arise depending on whether the organ comes from a living donor or one who has died. They observe the expertise—and the shortcomings—of doctors, nurses, and other professionals and describe the burdens that we place on people who are willing to donate. In this raw and vivid book, Gershun and Lantos ask us to consider just how far society should go in using one person's healthy body parts in order to save another person.

Kidney to Share provides an account of organ donation that is both personal and analytical. The combination of perspectives leads to a profound and compelling exploration of a largely opaque practice. Gershun and Lantos pull back the curtain to offer readers a more transparent view of the fascinating world of organ donation.

Book Requires Authentication Unlicensed Licensed 2023

In Beyond Medicine, Paul V. Dutton provides a penetrating historical analysis of why countless studies show that Americans are far less healthy than their European counterparts.

Dutton argues that Europeans are healthier than Americans because beginning in the late nineteenth century European nations began construction of health systems that focused not only on medical care but the broad social determinants of health: where and how we live, work, play, and age. European leaders also created social safety nets that became integral to national economic policy. In contrast, US leaders often viewed investments to improve the social determinants of health and safety-net programs as a competing priority to economic growth.

Beyond Medicine compares the US to three European social democracies—France, Germany, and Sweden—in order to explain how, in differing ways, each protects the health of infants and children, working-age adults, and the elderly. Unlike most comparative health system analyses, Dutton draws on history to find answers to our most nettlesome health policy questions.

Book Requires Authentication Unlicensed Licensed 2023

The number of elderly and disabled Americans in need of home health care is increasing annually, even as the pool of people—almost always women—willing to do this job gets smaller and smaller. The Caring Class takes readers inside the reality of home health care by following the lives of women training and working as home health aides in the South Bronx.

Richard Schweid examines home health care in detail, focusing on the women who tend to our elderly and disabled loved ones and how we fail to value their work. They are paid minimum wage so that we might be absent, getting on with our own lives. The book calls for a rethinking of home health care and explains why changes are urgent: the current system offers neither a good way to live nor a good way to die. By improving the job of home health aide, Schweid shows, we can reduce income inequality and create a pool of qualified, competent home health care providers who would contribute to the well-being of us all.

The Caring Class also serves as a guide into the world of our home health care system. Nearly 50 million US families look after an elderly or disabled loved one. This book explains the issues and choices they face. Schweid explores the narratives, histories, and people behind home health care in the United States, examining how we might improve the lives of both those who receive care and those who provide it.

Book Requires Authentication Unlicensed Licensed 2022

Don't Count Me Out chronicles the life of Bruce White from the beginning of his drug use in elementary school through criminal acts fueled by his need for drugs, to his miraculous recovery three decades later and involvement in the treatment of addicts, where he is now a leader in the rehabilitation field.

Rafael Alvarez's recounting of White's journey should inspire those dealing with the fallout of addiction. Alvarez, a journalist and screenwriter, allows the reader to get inside the head of an addict who was stealing alcohol from his parents at the age of nine, selling drugs and tripping on LSD and PCP by the time he hit seventh grade, and hooked on morphine before he turned fifteen. "Bruce White? I thought he was dead?" is a response encountered in many of the interviews Alvarez conducted.

Don't Count Me Out shines a spotlight on an improbable and stunning miracle. Though this is just one person's story, the contributing factors of early sexual assault, the role of permissive preoccupied parents, and the need for peer approval, among others, will resonate with many as the opioid crisis continues to haunt us.

Book Requires Authentication Unlicensed Licensed 2022

Japan is the fastest aging country, with the largest super-aged society in the world and growing larger by the day, yet its universal health care costs are relatively low. In Health Insurance Politics in Japan, Takakazu Yamagishi draws back the curtain for an international audience and investigates how Japan has been able to control health care costs through health insurance politics.

Covering the period from the Meiji Restoration to the Abe Administration, Yamagishi uses a historical institutionalist approach to examine the driving force behind the development of health insurance policies in Japan. Yamagishi pays special attention to the roles of government and medical professionals, the main actors of the policymaking and medical worlds, in this development. Health Insurance Politics in Japan pushes Japan into the spotlight of the international conversation about health care reform.

Book Requires Authentication Unlicensed Licensed 2022

In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience—the positive and the negative—as a mother of a now twenty-one-year-old son with severe autism. Lutz's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. We Walk is inspired by her own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language? Exploring these questions, We Walk directly—and humanly—examines social issues such as inclusion, religion, therapeutics, and friendship through the lens of severe autism.

In a world where public perception of autism is largely shaped by the "quirky geniuses" featured on television shows like The Big Bang Theory and The Good Doctor, We Walk demands that we center our debates about this disorder on those who are most affected by its impacts.

Book Requires Authentication Unlicensed Licensed 2021

Helping Soldiers Heal tells the story of the US Army's transformation from a disparate collection of poorly standardized, largely disconnected clinics into one of the nation's leading mental health care systems. It is a step-by-step guidebook for military and civilian health care systems alike. Jayakanth Srinivasan and Christopher Ivany provide a unique insider-outsider perspective as key participants in the process, sharing how they confronted the challenges firsthand and helped craft and guide the unfolding change.

The Army's system was being overwhelmed with mental health problems among soldiers and their family members, impeding combat readiness. The key to the transformation was to apply the tenets of "learning" health care systems. Building a learning health care system is hard; building a learning mental health care system is even harder. As Helping Soldiers Heal recounts, the Army overcame the barriers to success, and its experience is full of lessons for any health care system seeking to transform.

Book Requires Authentication Unlicensed Licensed 2021

In this revealing look at home care, Cynthia J. Cranford illustrates how elderly and disabled people and the immigrant women workers who assist them in daily activities develop meaningful relationships even when their different ages, abilities, races, nationalities, and socioeconomic backgrounds generate tension. As Cranford shows, workers can experience devaluation within racialized and gendered class hierarchies, which shapes their pursuit of security.

Cranford analyzes the tensions, alliances, and compromises between security for workers and flexibility for elderly and disabled people, and she argues that workers and recipients negotiate flexibility and security within intersecting inequalities in varying ways depending on multiple interacting dynamics.

What comes through from Cranford's analysis is the need for deeply democratic alliances across multiple axes of inequality. To support both flexible care and secure work, she argues for an intimate community unionism that advocates for universal state funding, designs culturally sensitive labor market intermediaries run by workers and recipients to help people find jobs or workers, and addresses everyday tensions in home workplaces.

Book Requires Authentication Unlicensed Licensed 2021

In More Than Medicine, LaTonya J. Trotter chronicles the everyday work of a group of nurse practitioners (NPs) working on the front lines of the American health care crisis as they cared for four hundred African American older adults living with poor health and limited means. Trotter describes how these NPs practiced an inclusive form of care work that addressed medical, social, and organizational problems that often accompany poverty. In solving this expanded terrain of problems from inside the clinic, these NPs were not only solving a broader set of concerns for their patients; they became a professional solution for managing "difficult people" for both their employer and the state. Through More Than Medicine, we discover that the problems found in the NP's exam room are as much a product of our nation's disinvestment in social problems as of physician scarcity or rising costs.

Book Requires Authentication Unlicensed Licensed 2020

Mixing personal history, interviewee voices, and academic theory from the fields of care work, the sociology of work, medical sociology, and nursing, Taking Care of Our Own introduces us to the hidden world of family caregivers. Using a multidimensional approach, Sherry N. Mong seeks to understand and analyze the types of skilled work that family caregivers do, the processes through which they learn and negotiate new skills, and the meanings that both caregivers and nurses attach to their care work.

Taking Care of Our Own is based on sixty-two in-depth interviews with family caregivers, home and community health care nurses, and other expert observers to provide a lens through which in-home care processes are analyzed, while also exploring how caregivers learn necessary procedures. Further, Mong examines the emotional labor of caregiving, as well as the identities of caregivers and nurses who are key players in the labor process, and gives attention to the ways in which the labor is transferred from medical professionals to family caregivers.

Book Requires Authentication Unlicensed Licensed 2013

A play about workplace relations among physicians, nurses, others who work in health care, and patients—and how their interaction affects the quality of patient care, for better or worse.

Book Requires Authentication Unlicensed Licensed 2012

In First, Do Less Harm, twelve health care professionals and researchers plus two former patients look at patient safety from a variety of perspectives, finding many of the proposed solutions to be inadequate or impractical.

Book Requires Authentication Unlicensed Licensed 2012

This concise book chronicles the often turbulent history of screening mammography since its introduction in the early 1970s.

Book Requires Authentication Unlicensed Licensed 2012

"Nursing, everyone believes, is the caring profession. Texts on caring line the walls of nursing schools and student shelves. Indeed, the discipline of nursing is often known as the 'caring science.' Because of their caring reputation, nurses top the...

Book Requires Authentication Unlicensed Licensed 2012

In this book, Suzanne Gordon draws on in-depth interviews with nurses and other health care professionals, research studies, and extensive firsthand reporting to better understand the myriad causes of and possible solutions to the current nursing crisis.

Book Open Access 2012

When unions undertake labor organizing campaigns, they often do so from strong moral positions, contrasting workers' rights to decent pay or better working conditions with the more venal financial motives of management. But how does labor confront management when management itself has moral legitimacy? In With God on Our Side, Adam D. Reich tells the story of a five-year campaign to unionize Santa Rosa Memorial Hospital, a Catholic hospital in California. Based on his own work as a volunteer organizer with the Service Employees International Union (SEIU), Reich explores how both union leaders and hospital leaders sought to show they were upholding the Catholic "mission" of the hospital against a market represented by the other. Ultimately, workers and union leaders were able to reinterpret Catholic values in ways that supported their efforts to organize.

More generally, Reich argues that unions must weave together economic and cultural power in order to ensure their continued relevancy in the postindustrial world. In addition to advocating for workers' economic interests, unions must engage with workers' emotional investments in their work, must contend with the kind of moral authority that Santa Rosa Hospital leaders exerted to dissuade workers from organizing, and must connect labor's project to broader conceptions of the public good.

Book Requires Authentication Unlicensed Licensed 2011

Florence Nightingale and her place in nursing history and in contemporary nursing discourse is a topic of continuing interest for nursing students, teachers, and professional associations. This book offers new scholarship on her work and legacy.

Book Requires Authentication Unlicensed Licensed 2011

In this collection of first-person narratives, we meet RNs working at the bedside, providing home care, managing hospital departments, teaching and doing research, lobbying for quality patient care, and campaigning for health care reform.

Book Requires Authentication Unlicensed Licensed 2008

Aaron and Stella Alterra had been married for more than sixty years when Aaron began to notice puzzling lapses in his wife's memory. Innocuous at first, they became more severe and more alarming. After a series of appointments and tests, the Alterras were informed that Stella was one of the more than 4.5 million Americans with Alzheimer's disease.Combining medical research on the disease and often-painful anecdotes of memory loss, deteriorating motor functions, personality shifts, support-group and daycare experiences, and drug trials, Alterra chronicles his transformation from husband to caregiver after his wife's diagnosis.More than a chronology of one family's experience of Alzheimer's disease, The Caregiver is an intelligent, beautifully reflective testimony to how family members turned caregivers become the ultimate advocates for their loved ones in the face of a disease with no cure.

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